Extended consultation for Supporting Children guideline
Autism CRC is currently working on a national practice guideline for supporting the development and participation of children on the autism spectrum and their families. As part of the guideline development process, we want to hear from as many people as possible about what’s important to them and what they think the guideline should include.
There are activities designed for children, young people, and adults on the autism spectrum, including people who communicate primarily in ways other than speech. There are activities for parents and caregivers, service providers, and the broader autism community.
The initial round of consultation is now closed. You can register to stay informed of future activities and the development of this guideline on the Get Involved page.
Completed activities
Online Survey (all adults)
Share your views on therapies and supports in this comprehensive survey.
Open to the whole autistic and autism communities including individuals on the autism spectrum, parents, and service providers.
Completed April 30, 2022.
Online Survey
(young persons on the autism spectrum)
Share your views on therapies and supports in this comprehensive survey.
Open to young people on the autism spectrum and requires parental consent.
Completed April 30, 2022.
Brief Survey
Share your views on therapies and supports by answering three main questions.
Open to children and young people on the autism spectrum, as well as adults who communicate mainly in ways other than speech. Requires parent consent and can be completed with parent support.
Completed April 30, 2022.
Expression through Art
Share your views on therapies and supports through a drawing, sketch, or painting.
Open to children, young people, and adults on the autism spectrum, including people who communicate mainly in ways other than speech. May require parent consent and can be completed with parent support.
Completed April 30, 2022.
Parent Observations and Reflection
Share your observations of your child’s experiences accessing therapies and supports, either currently or in the past.
Open to parents of children, young people, and adults on the autism spectrum who communicate mainly in ways other than speech.
Takes 5-15 minutes, depending on how much you want to share.
Completed April 30, 2022.
Focus groups
We have conducted 8 focus groups involving 47 individuals to learn from the views and experiences of autistic adults and parents of children on the autism spectrum.
Completed March 2022.
More about the guideline
The national guideline will support families to make informed choices when accessing services, and provide professionals with a set of recommendations to guide ethical and effective service delivery. The recommendations will be based on the best available research and a comprehensive community consultation process.
The guideline is being developed according to the National Health and Medical Research Council’s recommended process.
The guideline will be informed by research evidence (building on the synthesis completed in 2020), reviews of previous autism guidelines and the experiences of individuals on the autism spectrum and their families accessing therapy and support services, and comprehensive community consultation.