Australian Longitudinal Study of Autistic Adults (ALSAA) (25 years+)
The majority of autism research has focused on children. The aim of this longitudinal study, which started in 2015, was to describe the health and wellbeing of Australian autistic adults.
The ALSAA gathered data from autistic and non-autistic adults aged 25+ years old across two time points. It also collected information from family members and carers. The study has yielded many important insights into the experiences of autism in adulthood, including health and health services, employment, diagnosis, quality of life, loneliness, leisure participation, disclosure, the wellbeing of carers, activities of daily living, intellectual disability and physical activity.
Collaborations between Autism CRC's longitudinal research teams have led to closely aligned study design and common data points, enabling rich datasets to emerge. The combination of the datasets allowed reporting of results on participants with a broad age range, from 15-80 years to gain a broader, lifelong understanding in key areas. These longitudinal studies yielded many important insights into the experiences of Australia’s autistic community and contributed to the critical evaluation and refinement of a range of established measures for use with autistic people. More than 120 peer-reviewed publications have been published using data from our longitudinal studies. All of these resources are listed on Knowledge Centre and on corresponding project pages.
We would like to thank the many participants who gave significant time in completing the surveys for this study. Longitudinal data from this study will be made available for approved future research purposes through the Australian Autism Biobank in late 2023.
Reports
- Published 11 Aug 2022
Publications
- Published 10 May 2023
- Published 13 Jan 2023
- Published 21 Nov 2022
- Published 29 Nov 2021
- Published 10 Nov 2021
- Published 16 Sep 2021
- Published 10 Aug 2021
- Published 12 Jul 2021
- Published 12 Jul 2021
- Published 3 May 2021
- Published 1 Aug 2020
- Published 10 Jun 2020
- Published 6 May 2020
- Published 30 Apr 2020
- Published 11 Mar 2020
- Published 28 Feb 2020
- Published 4 Dec 2019
- Published 11 Nov 2019
- Published 14 Aug 2019
- Published 31 May 2019
- Published 13 Nov 2018
- Published 2 May 2018
- Published 11 Aug 2017
- Published 31 Jan 2017
- Published 1 Nov 2015
Program
AdulthoodProject code
3.013RCProject Leader(s)
- Julian Trollor, University of New South Wales